What if our DNA and medical information were part of our online footprint ?
Interested in ethical issues surrounding big-data sharing of patient genomic information? Then take the Wellcome Trust survey on behalf of the Global Alliance for Genomics and Health (GA4GH). The survey looks to get the public’s opinion on whether or not medical data, and DNA information in particular, should be stored and made accessible online and if so, how protected should it be? Who should be able to access and use it?
The survey has several sections:
This survey is anonymous, takes 20 minutes and is open to everyone – knowing which issues people have with having their personal medical data being stored online and their perceptions, fears and expectations of a data sharing program will be valuable information for future developments in the field.
The online survey can be found here: https://surveys.genomethics.org